Dementias Platform UK (DPUK) and Dementias Platform Australia (DPAU)
Dementias Platform UK (DPUK; https://www.dementiasplatform.uk/) offers researchers dementia-optimised cohort data from more than 50 population and clinical cohort studies, comprising records for over 3.5 million people. In partnership with DPUK, CHeBA has launched Dementias Platform Australia (DPAU; http://www.dementiasplatform.com.au/). DPAU will complement DPUK and other satellite dementias platforms, and allow access to research data from multiple dementia studies carried out in Australia, the Asia-Pacific region and beyond to all six continents. The close partnership between DPUK and DPAU enables a sharing of technical assets and best practice, and will facilitate international data analysis. COSMIC studies will be the first to upload data to DPAU in 2022.
Institute for Health Metrics and Evaluation (IHME) at the University of Washington
Coordinated through the Institute for Health Metrics and Evaluation (IHME) at the University of Washington, the Global Burden of Disease (GBD; https://www.healthdata.org/gbd/2019) study provides consistent and comparative descriptions of the major causes of mortality and morbidity for over 350 diseases and injuries. GBD estimates are regularly updated to ensure the most complete and highly comparable set of estimates possible. In partnership with the IHME, COSMIC studies are providing data to inform global dementia estimates. This includes data from countries previously under-represented in GBD estimates (e.g., Cuba, Tanzania and Malaysia). By providing new data COSMIC will help to produce more accurate estimations of the global burden of disease associated with dementia.
Davos Alzheimer’s Collaborative (DAC)
The Davos Alzheimer’s Collaborative (DAC; https://www.davosalzheimerscollaborative.org/) is “uniting leading organizations worldwide to build an innovation ecosystem that will accelerate breakthroughs, develop and scale promising solutions and equip every healthcare system to end Alzheimer's disease everywhere.” Through its Global Cohort Development program (https://www.davosalzheimerscollaborative.org/cohorts), DAC is building global cohorts to advance understanding of Alzheimer’s disease among diverse populations. COSMIC cohorts from regions including the Philippines, Malaysia and Singapore are among the first participants in this program, and are receiving resources from DAC to obtain new digital phenotyping and blood-based genetic and biomarker data. These data will be made available via the Alzheimer’s Disease Data Initiative (ADDI) platform (https://www.alzheimersdata.org/) as well as DPAU.